Our Goal...
is to do everything we can to accelerate the time it will take to develop a cure for Pompe Disease.
We will do this by pushing forth awareness and raising research funds for those who are working on a cure for this heartbreaking genetic disease.
Pompe Promises supports Dr. Kishnani's Pompe Disease Research Fund at Duke Children's Hospital.
We Fund
Dr. Kishnani is the world leading expert in the Pompe Disease research field. Our team is in full support of her efforts towards finding a cure for the Pompe Disease.
We Educate
By providing our audience with a variety of educational resources, our team will assist in spreading awareness for the Pompe disease.
We Help Build A Community
By telling the stories of the many Pompe warriors, we hope to grow a community to support these warriors.
The Impact of Awareness
Countless grass root organizations have worked on fundraising in order to impact thousands of diagnosed patients throughout the years
Courageous Pompe warriors sharing their stories and experiences have powered fundraising towards finding a cure, and now this is our chance to help them achieve their ultimate goal – click the links below to learn about some of them.
Numbers speak volumes.
It can be hard to understand how this disease affects those diagnosed and their families since it is such a rare disease. These are a couple of figures that will help you share awareness of Pompe Disease with others, help you demonstrate how infrequently it is diagnosed, and therefore how much extra work is needed for awareness and research funding.